Verse of the Day

Wednesday, December 23, 2015

Quick and Dirty Update

It's been a LONG time since I've had the desire or opportunity to write. I'm sitting here at 3:30 a.m., wondering just how to begin relating all of the happenings of the last few months. I'm not sure I have the emotional energy to be very descriptive--- my brain is down to bullet points.

  • February 28, 2015: D-man has a nocturnal seizure. It literally sounds like the child is fighting a criminal. D. starts seizure medication on March 3.
  • April 5, 2015: D-man has another nocturnal seizure. This one is frighteningly awful. Time to see the doctor again.
  • May 1, 2015: Mom goes in for carpal tunnel surgery on left hand.
  • June 10, 2015: Mom goes in for carpal tunnel surgery on right hand.
  • June 19, 2015: Mom starts Nuedexta for Pseudo Bulbar Affect. Can you say "Wonderdrug?" Within 2 weeks, the uncontrollable laughing and crying stops. I am feeling considerably more normal, emotionally-speaking. Best post-stroke medication ever!
  • July 2015: More new medications for mom: Gabapentin and Clonazepam are finally helping me sleep. These darned angiomas sure do create a lot of symptoms. I am very thankful to good doctors! First full-night's sleep since November 2013. Mom finally loses 40 pounds! Sleeping has it's benefits.
  • July 13, 2015: Superman has a 4.5 hour surgery to "install" his Taylor Spatial Frame. He had 6 metal rods inserted into his femur, and had his Achille's Tendon released. S. was at Phoenix Children's Hospital for 5 very traumatic days. I am thankful I was able to stay in the hospital with my poor little man.

  • July through December: S. progresses from being in a wheelchair to using a walker. He does not tolerate physical therapy; I believe past physical trauma prevents him from tolerating any pain. S. has been unable to attend public school, so he has had the privilege of having a wonderful homebound tutor. Life consists of me trying to do PT with S., helping him with physical needs, helping him with school. Can I just tell you, the kid is "high maintenance."
  • August 15, 2015: D-man starts to experience horrific headaches. Initially, he is treated for migraine. He starts a new seizure medication. Headaches continue and worsen.
  • August 23, 2015: D-man has first trip to the ER for headache relief. It just continues. He can't sleep. He can't do anything except pray to die.
  • August 25, 2015: D-man is finally admitted to Banner University Hospital. The treatment for migraine continues. No relief. Seeing you child in uncontrollable pain is the most disheartening, fearful, and anxiety-provoking event. Two kids in pain at the same time? This doesn't compute. D-man stays in the hospital for 3 days. He is sent home with new medications to try.
  • September 4, 2015: D-man is readmitted to Banner. He feels like his head is going to explode. Oh great, the car died today, too.
  • September 9, 2015: D-man has brain surgery to remove a bleeding cavernous angioma from right temporal lobe. Doctors finally admit angioma is causing severe headache.
    Blasted disease

    The culprit

    The incision
  • September 11, 2015: D-man is finally moved out of ICU.
  • September 14, 2015: D-man is finally released from hospital. Thank you to Scottsdale Bible's staff--- their love and help truly made difference in processing these events. Oh, darn. The refrigerator and freezer died today. So did the outdoor irrigation system.
    Friends sent gifts to S; what a joy!
  • September 22, 2015: Our dear doggie has to have emergency surgery following a routine neutering procedure. Sherlock recovers.
    Sherlock discovers the sofa
  • October 3, 2015: D-man officially starts to feel better! No more head pain.
  • October 11, 2015: Oldest adopted son collapses after playing on stage at church. He is rushed by ambulance to the hospital. Looks to be another child with seizures.
    Exhaustion following a seizure
  • October 12, 2015: Son has another seizure. Back in the ambulance. Back to the hospital. EEG appears normal. He is diagnosed with idiopathic seizures and is put on medication.
    At PCH
  • November 5, 2015: More seizures for B. Doctor thinks it may be a combination of "regular" and psychogenic seizures. This looks to be more complicated than we originally thought. Good thing I videoed the last "episode." If seizures happen with more frequency, we will need to admit him for a 3-day observation.
  • November 29, 2015: D-man is baptized! The Lord can bring wonderful things out of suffering!
  • December 1, 2015: Dear Husband goes to ER. Choking episode due to an esophageal stricture proved life-threatening when he could not eat or drink--- and he had already taken a full dose of insulin for dinner. 
  • December 2, 2015: B. has another "seizure."
  • December 22, 2015: Superman has the "cage" removed from his leg. He is now in a full-length cast for 6 weeks.
Well, that is my very brief synopsis of the year. Sigh.

Of course, sprinkled throughout the year were lots of other events: birthdays, choral performances, resigning from old jobs, starting new jobs, umpteen doctor visits, therapy visits, school suspensions, a new grandbaby(!)and behavioral melt-downs. All the things (and more) you might expect from a family of 10.

Still joyful in times of trouble
Happy 13!
Happy 14!
Happy 12!
Can he really be 21?
What a beautiful voice she has!
Happy 19!
Look who's feeling better!

I think I am tired. But I am also very grateful to my family and to my church to emotional support. We will survive!
Bye for now


  1. So sorry to read you have had such a terrible year. Stay strong and know that God is with you.
    Prayers from Scotland.

  2. Wowzers you've been through the ringer! Praying for you guys!